Because I was a Make-A-Wish recipient, I wanted to try and raise money for Make-A-Wish. I say “try” because 1) I’ve never done this before 2) I wasn’t sure how this would go or if anyone would donate ro my cause and 3) I thought
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Pray “Are any of you sick? You should call for the elders of the church to come and pray over yoou, anointing you with oil in the name of the Lord.” James 5:14 (NLT) This post is not particularly in order, but the best and
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When living with Alagille Syndrome, or any other chronic illness or disability, we often focus on the physical treatments such as medications, surgeries, therapies, etc, and these are important. But there’s another kind of treatment that can bring deep healing to our hearts and minds:
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Alagille Syndrome & Other Chronic Illness Living with Alagille Syndrome means living with a condition that affects multiple organs and systems in the body. For me, it’s the liver, heart, bones, eyes, ears, and more. I had a liver transplant at age 13, and I
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Alagille Syndrome & Blindness Alagille Syndrome is a rare genetic disorder that affects multiple organ systems, including the liver, heart, bones, eyes and more. For me, it also brought an unexpected challenge: blindness. Understanding Alagille Syndrome Alagille Syndrome is characterised by a reduced number of
Read more about WHAT ARE THE SYMPTOMS OF ALAGILLE SYNDROME? HERE’S HOW IT IMPACTED MY VISION