TQ ALAGILLE SYNDROME (CELEBRATING SUFFERING)
“…and here are a few examples out of many… When I was old enough to understand that I was born … More TQ ALAGILLE SYNDROME (CELEBRATING SUFFERING)
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ALAGILLE SYNDROME & 20 YEARS POST-LIVER TRANSPLANT
30 March, 2006 – 30 March, 2026 Alagille Syndrome & 20 Years Post-Liver Transplant There are anniversaries you celebrate with … More ALAGILLE SYNDROME & 20 YEARS POST-LIVER TRANSPLANT
ALAGILLE SYNDROME, CHIARI MALFORMATION & SYRINGOMYELIA
Alagille Syndrome, Chiari Malformation & Syringomyelia: When One Becomes Many I was born with Alagille Syndrome, a rare genetic condition … More ALAGILLE SYNDROME, CHIARI MALFORMATION & SYRINGOMYELIA
I’M PHYSICALLY SICK & SO ARE WE (SPIRITUALLY)
A person’s sick body reflects what humanity is like spiritually. In my book, Alagille Girl, I dedicated a chapter listing … More I’M PHYSICALLY SICK & SO ARE WE (SPIRITUALLY)
ALAGILLE SYNDROME & BLINDNESS: BETWEEN TWO REALITIES
The reality of sight and the reality of blindness. I never thought one could be in two realms when it … More ALAGILLE SYNDROME & BLINDNESS: BETWEEN TWO REALITIES
CIRRHOSIS BUT CLEAR-HEADED
Two weeks ago I went for a liver CT scan. Three days later I went for my liver appt. The … More CIRRHOSIS BUT CLEAR-HEADED
WHAT IS THE LIFE EXPECTANCY OF ALAGILLE SYNDROME? I’M 31 & MY LIVER IS 18
Exactly 18 years ago, I had a life-saving liver transplant surgery. This means, O-liver, is of legal age. Yep, Oliver … More WHAT IS THE LIFE EXPECTANCY OF ALAGILLE SYNDROME? I’M 31 & MY LIVER IS 18
MY ALAGILLE SYNDROME STORY IN A BOOK
It’s Not Just A Story, It’s My heart & Soul Finally, my book, ‘Alagille Girl’ is out and available – … More MY ALAGILLE SYNDROME STORY IN A BOOK
ALAGILLE SYNDROME, LIVER REJECTION & MORE
TQ BC for inviting me to speak and share my story with you this morning. So, I’m Nikki, and I’m … More ALAGILLE SYNDROME, LIVER REJECTION & MORE
ALAGILLE SYNDROME & BLINDNESS: BLIND GIRL ON A BULLET TRAIN
This year was my first year of being a blind girl and one of the feelings I felt is as … More ALAGILLE SYNDROME & BLINDNESS: BLIND GIRL ON A BULLET TRAIN