30 March, 2006 – 30 March, 2026 Alagille Syndrome & 20 Years Post-Liver Transplant There are anniversaries you celebrate with cake and balloons, and then there are anniversaries that stop you in your tracks, the kind that raises your eyes and think, Wow! I had
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I will be on 89.9 The Light, Australia’s (and New Zealand too) Christian radio station this Sunday 15 March between 7pm to 9pm. You can listen on Sunday via the 89.9 The Light website or app. The full interview with Host Clayton Bjelan (and CEO
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It All Started With Alagille Syndrome Someone once said, “If you want to blame your past for the bad things that happened, you must also blame your past for the good things that happened.” We blame our childhood. We blame our traumas. We blame the
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Alagille Syndrome, Chiari Malformation & Syringomyelia: When One Becomes Many I was born with Alagille Syndrome, a rare genetic condition that affects multiple systems in the body. It is often described as a liver disease, but that description only scratches the surface. Alagille Syndrome can
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…I was born with a rare condition called, Alagille Syndrome, and for me it affects my liver, my heart, my bones, vision, hearing, learning pace and more. I’ve had a liver transplant – almost 20 years ago. In March 2026, it will be Oliver’s 20th anniversary. I’m legally blind and have
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Life can be painful. But what if some of that pain isn’t punishment (In fact, since Jesus died on the cross for humannity, and resurrected in three days, He does not punish us by inflicting pain.)… but surgery? Just like a surgeon carefully cuts to
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Thank you Ps Paul McInstosh for sharing and quoting from Alagille Girl during your sermon. Timestamps: 51:32, 1:01:45, 1:07:41, 1:20:38
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A person’s sick body reflects what humanity is like spiritually. In my book, Alagille Girl, I dedicated a chapter listing all my medical conditions – past and present. Today, I want to give an updated and brief list of my chronic illnesses and disabilities. Past
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As a liver transplant recipient nearing 20 years post-surgery, DonateLife Week resonates with me. This annual campaign – from Sunday 27 July to Sunday 3 August in 2025 – encourages all Australians to reflect on organ and tissue donation and continue the life-saving legacy of
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