“…and here are a few examples out of many… When I was old enough to understand that I was born with Alagille Syndrome (multiple medical conditions). It wasn’t all sunshines and butterflies.12 years ago, when I was mentally and emotionally in the darkest place of
Read more about TQ ALAGILLE SYNDROME (CELEBRATING SUFFERING)
30 March, 2006 – 30 March, 2026 Alagille Syndrome & 20 Years Post-Liver Transplant There are anniversaries you celebrate with cake and balloons, and then there are anniversaries that stop you in your tracks, the kind that raises your eyes and think, Wow! I had
Read more about ALAGILLE SYNDROME & 20 YEARS POST-LIVER TRANSPLANT
I will be on 89.9 The Light, Australia’s (and New Zealand too) Christian radio station this Sunday 15 March between 7pm to 9pm. You can listen on Sunday via the 89.9 The Light website or app. The full interview with Host Clayton Bjelan (and CEO
Read more about MY ALAGILLE SYNDROME STORY ON 89.9 THE LIGHT
It All Started With Alagille Syndrome Someone once said, “If you want to blame your past for the bad things that happened, you must also blame your past for the good things that happened.” We blame our childhood. We blame our traumas. We blame the
Read more about IT ALL STARTED WITH ALAGILLE SYNDROME
Alagille Syndrome, Chiari Malformation & Syringomyelia: When One Becomes Many I was born with Alagille Syndrome, a rare genetic condition that affects multiple systems in the body. It is often described as a liver disease, but that description only scratches the surface. Alagille Syndrome can
Read more about ALAGILLE SYNDROME, CHIARI MALFORMATION & SYRINGOMYELIA
My Alagille Syndrome Gave Me This Concept …I was born with a rare condition called, Alagille Syndrome, and for me it affects my liver, my heart, my bones, vision, hearing, learning pace and more. I’ve had a liver transplant – almost 20 years ago. In March 2026, it will
Read more about MY ALAGILLE SYNDROME GAVE ME THIS CONCEPT
Life can be painful. But what if some of that pain isn’t punishment (In fact, since Jesus died on the cross for humannity, and resurrected in three days, He does not punish us by inflicting pain.)… but surgery? Just like a surgeon carefully cuts to
Read more about DID YOU KNOW GOD IS DOING SURGERY ON US
Thank you Ps Paul McInstosh for sharing and quoting from Alagille Girl during your sermon. Timestamps: 51:32, 1:01:45, 1:07:41, 1:20:38
Read more about ALAGILLE GIRL AT REGENERATION CHURCH
A person’s sick body reflects what humanity is like spiritually. In my book, Alagille Girl, I dedicated a chapter listing all my medical conditions – past and present. Today, I want to give an updated and brief list of my chronic illnesses and disabilities. Past
Read more about I’M PHYSICALLY SICK & SO ARE WE (SPIRITUALLY)