TQ ALAGILLE SYNDROME (CELEBRATING SUFFERING)

“…and here are a few examples out of many…

When I was old enough to understand that I was born with Alagille Syndrome (multiple medical conditions). It wasn’t all sunshines and butterflies.
12 years ago, when I was mentally and emotionally in the darkest place of my life. Black was my brightest colour. Hurt was my only lover.
When I was in the recovery room after right hip replacement surgery. It felt like someone had just bashed up my entire right leg. I had no joy.
When I found out for the first time in my life that my right eye is blind. It wasn’t blissful. It was frightful.
And when I found out just last month that my left eye is blind now. I did not feel blessed. I did not feel like celebrating.

So, why am I standing here tonight with a speech titled, Celebrating Suffering?

You see, over the decades (33 years) pain & suffering has taught me something unexpected. And I want to share it with you tonight…”