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Alagille Girl

A rare patient with an extraordinary life

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MORE MONEY FOR MAKE-A-WISH

Because I was a Make-A-Wish recipient, I wanted to try and raise money for Make-A-Wish. I say “try” because 1) I’ve never done this before […]

Read More November 1, 2022

HOW TO CARE FOR A P.A.T.I.E.N.T. IN 7 PRACTICAL WAYS

Pray “Are any of you sick? You should call for the elders of the church to come and pray over yoou, anointing you with oil […]

Read More September 1, 2022

WHAT IF WE REPLACE RELIGION WITH RELATIONSHIP?

What is Religion? Religion is often understood as a structured system of beliefs, practices and rules used to express reverence for a divine power. In […]

Read More May 1, 2022

WHAT A FRIEND WE HAVE IN JESUS

Joseph Scriven was originally from Ireland. He was engaged to be married, but the night before the wedding, his fiance tragically drowened. Heartbroken, Joseph eventuually […]

Read More March 29, 2022

UNDERSTANDING UNFAIRNESS

I wrote a bit about my vision and eye condition in my book, Alagille Girl, but I want to share more (the bits that I […]

Read More January 20, 2022

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