Anyone with chronic illness or disability should be able to see themselves reflected in the world around them. This week, Mattel unveiled a brand new addition to its Barbie range: the first-ever doll representing Type 1 diabetes. This doll isn’t just a toy; it’s raising
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The reality of sight and the reality of blindness. I never thought one could be in two realms when it comes to vision. It’s been almost four years since I was told I’m legally blind. And I’m still trying to figure out how to live
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Laughter Isn’t Just Fun – It’s Freedom “Laughter is the best medicine.” You’ve heard it before. But for those living with long-term illness, or disability, laughter becomes more than a punch-line. I first learned to laugh at my sickness and disability in my late 20s,
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God is never out of touch with our reality. Jesus: Fully God, Yet Fully Human When Jesus Christ left heaven’s glory to walk among us, He didn’t cling to His divine advantages. Instead, He willingly handicapped Himself, not by force, but by choice. Though He
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I was born with two factors – one, I was born in a Christian family and two, I was born with a rare disorder, Alagille Syndrome. And now that I’m in my 30s, I can see some similarities and common ground between the church and
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Two weeks ago I went for a liver CT scan. Three days later I went for my liver appt. The days before my scan and appt, I didn’t think too much of everything. One of the reasons why I didn’t think too much of the
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Alagille Syndrome is a rare genetic condition that affects multiple organs and systems within the boddy, including the liver, heart, bones, hearing and vision. For our patient Nikki Lee, having Alagille Syndrome has meant a lifetime in and out of hospital seeking care from a
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Email from the editor – TQ New Life Magazine for making this article all about my memoir, Alagille Girl.
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TQ pastor for giving me this time to share my testimony on Easter Sunday. When I started praying for ideas of what to share this morning, God gave me two words, “Celebrating Suffering”. Then, I searched up the word suffering, and these words were associated
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Exactly 18 years ago, I had a life-saving liver transplant surgery. This means, O-liver, is of legal age. Yep, Oliver can do whatever Oliver wanna do. Except drink. No red wine. Only Ribena. It’s extraordinary how my life extended for another 18 years and although
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