Alagille Syndrome, Chiari Malformation & Syringomyelia: When One Becomes Many I was born with Alagille Syndrome, a rare genetic condition that affects multiple systems in the body. It is often described as a liver disease, but that description only scratches the surface. Alagille Syndrome can
Read more ALAGILLE SYNDROME, CHIARI MALFORMATION & SYRINGOMYELIA
As a liver transplant recipient nearing 20 years post-surgery, DonateLife Week resonates with me. This annual campaign – from Sunday 27 July to Sunday 3 August in 2025 – encourages all Australians to reflect on organ and tissue donation and continue the life-saving legacy of
This National Diabetes Week (13-19 July 2025), I want to shine a light on a condition that’s personal to me, and that is, diabetes. As someone who has experience with drug-induced diabetes, which involves monitoring my blood sugar levels with a continuous glucose monitor (CGM)
Anyone with chronic illness or disability should be able to see themselves reflected in the world around them. This week, Mattel unveiled a brand new addition to its Barbie range: the first-ever doll representing Type 1 diabetes. This doll isn’t just a toy; it’s raising