ALAGILLE GIRL AT REGENERATION CHURCH
Thank you Ps Paul McInstosh for sharing and quoting from Alagille Girl during your sermon. Timestamps: 51:32, 1:01:45, 1:07:41, 1:20:38
Thank you Ps Paul McInstosh for sharing and quoting from Alagille Girl during your sermon. Timestamps: 51:32, 1:01:45, 1:07:41, 1:20:38
Alagille Syndrome is a rare genetic condition that affects multiple organs and systems within the boddy, including the liver, heart, bones, hearing and vision. For our patient Nikki Lee, having Alagille Syndrome has meant a lifetime in and out of hospital seeking care from a
Email from the editor – TQ New Life Magazine for making this article all about my memoir, Alagille Girl.
TQ pastor for giving me this time to share my testimony on Easter Sunday. When I started praying for ideas of what to share this morning, God gave me two words, “Celebrating Suffering”. Then, I searched up the word suffering, and these words were associated
It’s Not Just A Story, It’s My heart & Soul Finally, my book, ‘Alagille Girl’ is out and available – thank God! I was born with a rare illness and have faced continuous medical, physical, emotional and spiritual challenges for the past 3 decades of
TQ BC for inviting me to speak and share my story with you this morning. So, I’m Nikki, and I’m 30 now. When I was a baby, I was diagnosed with a really rare condition called Alagille Syndrome. For me, Alagille Syndrome affects my liver,
Because I was a Make-A-Wish recipient, I wanted to try and raise money for Make-A-Wish. I say “try” because 1) I’ve never done this before 2) I wasn’t sure how this would go or if anyone would donate ro my cause and 3) I thought
Alagille Syndrome & Other Chronic Illness Living with Alagille Syndrome means living with a condition that affects multiple organs and systems in the body. For me, it’s the liver, heart, bones, eyes, ears, and more. I had a liver transplant at age 13, and I
Read more ALAGILLE SYNDROME TREATMENT: THE SPIRITUAL KIND FOR SPIRITUAL & MENTAL HEALTH