SPEAKING & MEDIA

MY ALAGILLE SYNDROME STORY ON RARE DISEASE

By
No Ordinary Girl
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This article was written by Nikki Lee

Nikki Lee is a self-published author of Alagille Girl, named after her rare genetic disorder, Alagille Syndrome. For Nikki, Alagille Syndrome affects her liver, her heart, her bones, vision, hearing, learning pace, and physical development.