20 YEARS OF POST LIVER TRANSPLANT (OLIVER’S 20TH)
30 March, 2006 – 30 March, 2026 20 years ago, I had a liver transplant & I threw a little birthday celebration for Oliver.
Category: LIFE UPDATE
TIK TOK-ING ABOUT MY BLINDNESS & MORE
I’M PHYSICALLY SICK & SO ARE WE (SPIRITUALLY)
A person’s sick body reflects what humanity is like spiritually. In my book, Alagille Girl, I dedicated a chapter listing all my medical conditions – past and present. Today, I want to give an updated and brief list of my chronic illnesses and disabilities. Past
BETWEEN TWO REALITIES
The reality of sight and the reality of blindness. I never thought one could be in two realms when it comes to vision. It’s been almost four years since I was told I’m legally blind. And I’m still trying to figure out how to live
CIRRHOSIS BUT CLEAR-HEADED
Two weeks ago I went for a liver CT scan. Three days later I went for my liver appt. The days before my scan and appt, I didn’t think too much of everything. One of the reasons why I didn’t think too much of the
WHAT IS THE LIFE EXPECTANCY OF ALAGILLE SYNDROME? I’M 31 & MY LIVER IS 18
Exactly 18 years ago, I had a life-saving liver transplant surgery. This means, O-liver, is of legal age. Yep, Oliver can do whatever Oliver wanna do. Except drink. No red wine. Only Ribena. It’s extraordinary how my life extended for another 18 years and although
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MY ALAGILLE SYNDROME STORY IN A BOOK
It’s Not Just A Story, It’s My heart & Soul Finally, my book, ‘Alagille Girl’ is out and available – thank God! I was born with a rare illness and have faced continuous medical, physical, emotional and spiritual challenges for the past 3 decades of
BLIND ALAGILLE SYNDROME GIRL ON A BULLET TRAIN
This year was my first year of being a blind girl and one of the feelings I felt is as if I was thrown into a bullet train. There were no warning signs, I had no choice and it happened so fast. I was born
WHAT ARE THE SYMPTOMS OF ALAGILLE SYNDROME? HERE’S HOW IT IMPACTED MY VISION
Alagille Syndrome & Blindness Alagille Syndrome is a rare genetic disorder that affects multiple organ systems, including the liver, heart, bones, eyes and more. For me, it also brought an unexpected challenge: blindness. Understanding Alagille Syndrome Alagille Syndrome is characterised by a reduced number of
Read more WHAT ARE THE SYMPTOMS OF ALAGILLE SYNDROME? HERE’S HOW IT IMPACTED MY VISION