…I was born with a rare condition called, Alagille Syndrome, and for me it affects my liver, my heart, my bones, vision, hearing, learning pace and more. I’ve had a liver transplant – almost 20 years ago. In March 2026, it will be Oliver’s 20th anniversary. I’m legally blind and have
Read more PHYSICAL SICKNESS REFLECTS WHAT HUMANITY IS LIKE SPIRITUALLY
Life can be painful. But what if some of that pain isn’t punishment (In fact, since Jesus died on the cross for humannity, and resurrected in three days, He does not punish us by inflicting pain.)… but surgery? Just like a surgeon carefully cuts to
A person’s sick body reflects what humanity is like spiritually. In my book, Alagille Girl, I dedicated a chapter listing all my medical conditions – past and present. Today, I want to give an updated and brief list of my chronic illnesses and disabilities. Past
Laughter Isn’t Just Fun – It’s Freedom “Laughter is the best medicine.” You’ve heard it before. But for those living with long-term illness, or disability, laughter becomes more than a punch-line. I first learned to laugh at my sickness and disability in my late 20s,
Read more YOU GOTTA LEARN TO LAUGH AT LIFE’S LITTLE OR LARGE DIFFICULTIES
God is never out of touch with our reality. Jesus: Fully God, Yet Fully Human When Jesus Christ left heaven’s glory to walk among us, He didn’t cling to His divine advantages. Instead, He willingly handicapped Himself, not by force, but by choice. Though He
I was born with two factors – one, I was born in a Christian family and two, I was born with a rare disorder, Alagille Syndrome. And now that I’m in my 30s, I can see some similarities and common ground between the church and
Pray “Are any of you sick? You should call for the elders of the church to come and pray over yoou, anointing you with oil in the name of the Lord.” James 5:14 (NLT) This post is not particularly in order, but the best and
Read more ALAGILLE SYNDROME HAS TAUGHT ME HOW ONE SHOULD CARE FOR A P.A.T.I.E.N.T.
When living with Alagille Syndrome, or any other chronic illness or disability, we often focus on the physical treatments such as medications, surgeries, therapies, etc, and these are important. But there’s another kind of treatment that can bring deep healing to our hearts and minds: