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Nikki Lee

Nikki Lee is a self-published author of Alagille Girl, named after her rare genetic disorder, Alagille Syndrome. For Nikki, Alagille Syndrome affects her liver, her heart, her bones, vision, hearing, learning pace, and physical development.
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Artikel von Nikki Lee

THE PAST THAT MADE ME

Someone once said, “If you want to blame your past for the bad things that happened, you must also blame your past for the good things that happened.” We blame our childhood. We blame our traumas. We blame the unfairness. But we rarely stop to

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CHIARI MALFORMATION MONTH

Chiari Malformation With Syringomyelia: Understanding The Condition September is Chiari Malformation Awareness Month – a time to highlight a rare but serious neurological condition that affects the brain and spinal cord. My Chiari Story It was December 2022, and I was sitting in a booth

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DONATELIFE WEEK

As a liver transplant recipient nearing 20 years post-surgery, DonateLife Week resonates with me. This annual campaign – from Sunday 27 July to Sunday 3 August in 2025 – encourages all Australians to reflect on organ and tissue donation and continue the life-saving legacy of

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NATIONAL DIABETES WEEK

This National Diabetes Week (13-19 July 2025), I want to shine a light on a condition that’s personal to me, and that is, diabetes. As someone who has experience with drug-induced diabetes, which involves monitoring my blood sugar levels with a continuous glucose monitor (CGM)

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