20 YEARS OF POST LIVER TRANSPLANT (OLIVER’S 20TH)
30 March, 2006 – 30 March, 2026 20 years ago, I had a liver transplant & I threw a little birthday celebration for Oliver.
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Nikki Lee
Nikki Lee is a self-published author of Alagille Girl, named after her rare genetic disorder, Alagille Syndrome. For Nikki, Alagille Syndrome affects her liver, her heart, her bones, vision, hearing, learning pace, and physical development.
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MY ALAGILLE SYNDROME STORY ON 89.9 THE LIGHT
I will be on 89.9 The Light, Australia’s (and New Zealand too) Christian radio station this Sunday 15 March between 7pm to 9pm. You can listen on Sunday via the 89.9 The Light website or app. The full interview with Host Clayton Bjelan (and CEO
THE PAST THAT MADE ME
Someone once said, “If you want to blame your past for the bad things that happened, you must also blame your past for the good things that happened.” We blame our childhood. We blame our traumas. We blame the unfairness. But we rarely stop to
TIK TOK-ING ABOUT MY BLINDNESS & MORE
CHIARI MALFORMATION MONTH
Chiari Malformation With Syringomyelia: Understanding The Condition September is Chiari Malformation Awareness Month – a time to highlight a rare but serious neurological condition that affects the brain and spinal cord. My Chiari Story It was December 2022, and I was sitting in a booth
PHYSICAL SICKNESS REFLECTS WHAT HUMANITY IS LIKE SPIRITUALLY
…I was born with a rare condition called, Alagille Syndrome, and for me it affects my liver, my heart, my bones, vision, hearing, learning pace and more. I’ve had a liver transplant – almost 20 years ago. In March 2026, it will be Oliver’s 20th anniversary. I’m legally blind and have
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DID YOU KNOW GOD IS DOING SURGERY ON US
Life can be painful. But what if some of that pain isn’t punishment (In fact, since Jesus died on the cross for humannity, and resurrected in three days, He does not punish us by inflicting pain.)… but surgery? Just like a surgeon carefully cuts to
ALAGILLE GIRL AT REGENERATION CHURCH
Thank you Ps Paul McInstosh for sharing and quoting from Alagille Girl during your sermon. Timestamps: 51:32, 1:01:45, 1:07:41, 1:20:38
I’M PHYSICALLY SICK & SO ARE WE (SPIRITUALLY)
A person’s sick body reflects what humanity is like spiritually. In my book, Alagille Girl, I dedicated a chapter listing all my medical conditions – past and present. Today, I want to give an updated and brief list of my chronic illnesses and disabilities. Past
DONATELIFE WEEK
As a liver transplant recipient nearing 20 years post-surgery, DonateLife Week resonates with me. This annual campaign – from Sunday 27 July to Sunday 3 August in 2025 – encourages all Australians to reflect on organ and tissue donation and continue the life-saving legacy of