SPEAKING & MEDIA

BEHIND THE DIAGNOSIS OF ALAGILLE SYNDROME

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I sat down with CEO & Founder of Body Buddies, Aayushi, to talk about my medical diagnosis of Alagille Syndrome, which affects my liver, my heart, my bones, vision, hearing, physical development and learning pace…

As a transplant recipient, I cannot say that I’ve never though about whether or not I deserved a new liver, which I had 20 years ago… More on this in the podcast interview below…

Watch the podcast interview on Youtube (below) or listen on Spotify (below)…

Watch the podcast interview on Youtube above or listen to the interview on Spotify below.

Please note that during this interview I mistakenly mentioned “almost every night” my parents had to drive me to the Royal Children’s Hospital. It was only occasionally.

This article was written by Nikki Lee

Nikki Lee is a self-published author of Alagille Girl, named after her rare genetic disorder, Alagille Syndrome. For Nikki, Alagille Syndrome affects her liver, her heart, her bones, vision, hearing, learning pace, and physical development.