Two weeks ago I went for a liver CT scan. Three days later I went for my liver appt. The days before my scan and […]
Tag: Alagille Syndrome
ALAGILLE GIRL AT AUSTIN HOSPITAL
Alagille Syndrome is a rare genetic condition that affects multiple organs and systems within the boddy, including the liver, heart, bones, hearing and vision. For […]
NOW ON NEW LIFE MAGAZINE
Email from the editor – TQ New Life Magazine for making this article all about my memoir, Alagille Girl.
IT’S NOT JUST A STORY, IT’S MY HEART AND SOUL
Finally, my book, ‘Alagille Girl’ is out and available – thank God! I was born with a rare illness and have faced continuous medical, physical, […]
LIVER REJECTION, LIFE IS SHORT
TQ BC for inviting me to speak and share my story with you this morning. So, I’m Nikki, and I’m 30 now. When I was […]
UNDERSTANDING UNFAIRNESS
I wrote a bit about my vision and eye condition in my book, Alagille Girl, but I want to share more (the bits that I […]