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Alagille Girl

A rare patient with an extraordinary life

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HOW DID JESUS HANDICAP HIMSELF FOR HUMANITY?

God is never out of touch with our reality. Jesus: Fully God, Yet Fully Human When Jesus Christ left heaven’s glory to walk among us, […]

Read More May 1, 2025

WHAT DOES A CHURCH AND A HOSPITAL HAVE IN COMMON?

I was born with two factors – one, I was born in a Christian family and two, I was born with a rare disorder, Alagille […]

Read More April 26, 2025

CIRRHOSIS BUT CLEAR-HEADED

Two weeks ago I went for a liver CT scan. Three days later I went for my liver appt. The days before my scan and […]

Read More January 17, 2025

ALAGILLE GIRL AT AUSTIN HOSPITAL

Alagille Syndrome is a rare genetic condition that affects multiple organs and systems within the boddy, including the liver, heart, bones, hearing and vision. For […]

Read More September 3, 2024

NOW ON NEW LIFE MAGAZINE

Email from the editor – TQ New Life Magazine for making this article all about my memoir, Alagille Girl.

Read More June 20, 2024

SHARING ON EASTER SUNDAY

TQ pastor for giving me this time to share my testimony on Easter Sunday.  When I started praying for ideas of what to share this […]

Read More April 3, 2024

OLIVER IS OF LEGAL AGE

Exactly 18 years ago, I had a life-saving liver transplant surgery. This means, O-liver, is of legal age. Yep, Oliver can do whatever Oliver wanna […]

Read More March 30, 2024

IT’S NOT JUST A STORY, IT’S MY HEART AND SOUL

Finally, my book, ‘Alagille Girl’ is out and available – thank God! I was born with a rare illness and have faced continuous medical, physical, […]

Read More December 19, 2023

LIVER REJECTION, LIFE IS SHORT

TQ BC for inviting me to speak and share my story with you this morning. So, I’m Nikki, and I’m 30 now. When I was […]

Read More June 24, 2023

BLIND GIRL ON A BULLET TRAIN

This year was my first year of being a blind girl and one of the feelings I felt is as if I was thrown into […]

Read More December 14, 2022

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